My sweet girl Amelia has had a really rough few months, she had surgery the beginning of November, and as always she bounced back immediately. She had a really big seizure 2 weeks ago that lasted 10 minutes and required ambulance intervention. She has had a lot of odd seizures lately. She’s getting afos next week to stop her from tip toeing and to straighten her ankles. Amelia has been having some severe behaviors. She will scream and fit for up to an hr just hitting, kicking, bitting , pulling etc herself, others and objects. I’ve been feeling like I’m failing her so much lately with these fits she has. Half of the time I don’t feel like she’s her anymore. I just want my sweet loving happy girl back.. She’s still in early intervention, physical therapy, speech/food therapy etc…Early intervention will get her into a special education pre school next school year, and that was hard to grasp “special education” but she is a special amazing girl. Potty training is a total shit show (quite literally) she has zero attention span and we’re not trying to force it either. She still has the awful thrill to paint herself and everything in her 💩. Send help 🤮😂

Big brother Greyson is so supportive and loving and protective over his sisters. He is seriously the best big brother they could ever need. He’s just so genuine and I love that so much about him. He knows when his sisters need him the most and he knows how far just a cuddle sesh will go. I don’t know what I did to deserve him but I’ll be eternally grateful.

Baby sister Hazel just had her gtube placed! She is such a rockstar babe. Acts like nothing even happened the moment she woke up. She is always so happy and cheerful. We’ve had a few worrisome genetic diagnosis come back for her, and we are just trying to stay optimistic. She is such a bright smile and a tender hug. She turns 1 years old next month!! The time sure has flown.

These kids are everything.

Sorry for the long post, it’s been awhile since I’ve been in here.

Old pic before Hazels surgery

Sept '2019 Babies