Hi fellow glow users!

I’m reaching out here mostly to ease my own nerves and hoping someone else has been in a similar situation since I’ve been freaking out every since my most recent gyno appt (def not looking for medical advise, I do plan to follow up with the doctors). For reference, I am a 25 year old female.

Basically this all started about a year ago during covid - I began having daily right sided flank pain that would get so much worse with my period. I do have a history of PCOS and have been using birth control pills (Zovia 1/35) for 6 years consecutively at this point. The PCOS has been controlled super well since starting the pill - bleeding only for 5 days every month and cramps are manageable (I was no longer bed ridden for the 7 day duration of my period prior to starting BC). I went to my GP doctor who sent me to a urologist after finding microscopic blood in my urine. I had an ultra sound done which showed no crystals or stones in my bladder or kidneys. Urologist also sent me out for a ct scan with fluorescence which showed normal urinary function (no back flow). I then worked the microscopic blood with my gyno for a UTI and PCOS (despite being asymptomatic) and negative results again - no bacterial growth, no yeast, no white blood cells, normal hormone levels, not pregnant. My gyno sent me out for a trans vaginal ultrasound for the PCOS - and coincidentally found a fibroid half the size of my uterus but no cysts. He told me that fibroids are common and mine was located nowhere that would affect my ability to have kids later on. Since at this point the pain had subsided, we attributed it to a random episode and changed my birth control pill considering maybe it was the cramps.

Fast forward a year later, the right sided flank pain returned and also began involving my abs. I also began to visibly bleed longer than normal for myself since I’d been regular for 6 years now, so I went to a different gynecologist for a second opinion. By the time I got in - my period had ended but she still found microscopic blood in my urine again (no UTI still). She asked me about the history of the fibroid and I said it was a coincidental finding from last year but as far as I knew it was not there in 2015. This new gynocologist now suggests that I see an oncologist and work it up for a myosarcoma since it grew so rapidly within 6 years and I’m young/been on contraception for the duration of that time (best case scenario, could be less time since I never got another ultrasound between 2021 and 2015).

Anyone have a similar experience and or been through that diagnosis?

PCOS Support