HLHS diagnosis

So I've had my anatomy scan and fetal echo. We are expecting a boy who has a congenital heart defect called hyperplastic left heart syndrome (HLHS).  While we've been told that surgery can repair, it will be a touch and go road for awhile.  Anyone else deal with this type of defect?  The doctor seems to really know what he's talking about and has patients who are now in their 20s which is encouraging.  Prayers requested!