Infant kidney dilation

My son is almost three months old and has had dilated kidneys since before he was born. It was noticed before he was born but I was told it would most probably resolve itself after birth. Unfortunately, he has had two ultrasounds after birth to check and they are still dilated. He also had a voiding urethragram this week and we now know it is not reflux like the doctor thought that is causing the kidneys to hold fluid. He has since been referred to a specialist. Has anyone else experienced this with their babies? I'm trying not to worry so much but it's hard. He won't see the urologist for several more weeks. Any information is appreciated!