Diagnosed after 10 years
Hello everyone! I had my laproscopy almost 2 weeks ago, and my follow up appointment is tomorrow and looking for advise.
To give a little background, Since the beginning of college I have been having pain that would bring me to my knees and send me to the ER. I've had everything; colonoscopy, endoscopy, shots in my spine 3 different times, etc. I gave up about 3 years ago with doctors because i was tired of always hitting a dead end, and doctors looking at me like I was crazy. I waited a few years and symptoms got worse. I decided to try to lose weight last year to see if it would help. I lost 55 pounds and am in the best shape of my life, and at this point I was having increased new symptoms and started tracking the pain in a calendar app.
Anyway, now we're here and we had not gotten pregnant, so I went to a new doctor who listened and wanted to have the laproscopy. Afterwards she gave the news to my husband that i have stage 3 endo. She explained to him that she couldn't remove the bulk of it due to fear of damage to my ureter, bladder, and kidney. She also told him we need to go to a fertility specialist even though my tubes were clear thankfully. She wanted to wait to talk to me at the follow up, after the initial shock wore off and I was off meds. I've gotten some info that I piece together from my husband and mom but I still haven't wrapped my head around it all. I know I need to be prepared with questions for tomorrow and I keep staring at a blank paper. 10 years of questions, doctors, self doubt and trying to figure it out, and now I'm just overwhelmed and blank. Does anyone have any advise going into this meeting tomorrow, or any suggested questions to ask?
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