chronic illnesses

I'm wondering if there are in mommies out there with a sick baby. When my LO was 2 months I found out he has Biliary Atresia, a very rare liver disease in infants. He's on a ton of medicine and even had a biopsy and a surgery. I've been staying strong and even stopped working to make sure he is getting healthier ( not that it can be cured). His father isn't much involved in our lives but I get help and support from my mom and other family members. I just wanna know who else is in my boat and how they are dealing with it. I'm a designer so I try to freelance work when I can but he has so many appointments and it's so much to have to look out for him now,