holoprosencephaly

Looks like my 16 week old baby might have this or a variation of this. Has anyone experienced this? I've looked it up and it's horrible. I know miracles can happen but at this point I've almost lost all hope. I have to see a genetic counselor, have a Mri on her brain, have another special ultrasound and also see a radiologist. What would you do if you were in my shoes. I'm hoping for a miracle