Hi all, I'm 19, about to turn 20 in October and from New Zealand. For the past year I've had intense abdominal pain that goes into my back, rests in my hips, and even down my legs which effects my ability to walk. This pain can be set off by really simple things like bed sheets lying on my abdomen in some cases or standing for too long.

Last year I was put on cerazette and had some really weird periods lasting for more than two weeks. One cycle my period lasted for three weeks and at that time during sex it felt like there was air getting trapped which was starting to cause pain. My GP initially cleared me and said that it should go away in a few days. When she found out I was still in pain and it was getting worse she suggested that I go in to the hospital where they would be able to run some more tests.

They ran all the tests they could think of (ultrasounds both internal and external, MRI, X-Ray's, blood tests, internal examinations, vaginal swabs) and the only thing they could find was that I was a little constipated.

Fast forward a few days they discharged me after pumping me full of laxatives while I was screaming in pain because of my abdominal pain.

Since then I have had 5 more admissions to hospital all for the same reason all set off by little things like standing up for more than 20 minutes or lying still in bed, I've also had countless pelvic floor physio sessions and pain team consultations. Both of which helped. I was feeling more like myself early February.

Up till August I had been slowly cutting down on my meds and was super proud of my progress. Now this August the pain has come back, with a vengeance. I will not leave my house without my crutches, I haven't worked in about 6 weeks, I'm putting my university studies on hold for a physical and mental break, and my friends talk to me less and less because they don't understand why I don't want to go out.

I am so fed up with this and doctors are telling me there isn't anything they can do because they have "explored every possible avenue" some have even tried calling it a "neuropathological condition" which is total BS if you ask me. I don't want to spend most of my time in bed or lounging around home I want to go out with my friends and have a few drinks or go see a movie, even go grocery shopping, but most of the time I can't because of this pain. Not just the pain but also the unpredictability of my pain, and the fact that there are no identifiable triggers before I have a 'pain spike' which most of the time require morphine to calm the pain.

Nobody knows what it is or how to treat it. I live in New Zealand and dealing with doctors here is such a mission, half the time they refuse to believe that I am in pain or that this is majorly effecting how I live. I'm also worried that some doctors think I'm just drug seeking because they haven't identified anything clinically wrong yet although I keep going back to the ED.

My intention for writing this wasn't to rant (although thank you for reading through my rant, I do deeply appreciate it) I just really want to know if anyone has experienced something similar, or even if you have had symptoms like these diagnosed/treated. At this point my mother, boyfriend and I are prepared to do almost anything to get this pain sorted It's stressing the both of them out so much more than what they let on, and I want to get back to living pain free.