Cystic fibrosis & neurofibromatosis
So I found out a month ago I'm a carrier for cystic fibrosis I was told it would be a slim to none chance my partner would also be a carrier and today I found out my partner is also a carrier, there's a 1/4 chance my son will have this disease and I am so scared, I'm 21 weeks pregnant and I'm in a high risk pregnancy and so far everything has been good they asked me if I wanted to do a test to test my sons fluid to see if he had CF instead of waiting until birth and I said absolutely not due to the fact that it can increase risk of miscarriage I refuse to put my son in harms way just to see if he has CF now instead of waiting until birth because even if we did find out now there is nothing they can do until he is born anyways so once he is born they will draw blood from his heal and test him, also my partner has a disease called type 1 neurofibromatosis which is a Benin tumor in his head there is a 50% chance my son will have that as well and he could have either the same type as my partner or he could contract a worse type 2 or 3 I'm 18 years old this is my first baby and I couldn't be more scared and upset if anyone has had a similar thing happen to them or any information on these topics please feel free to share I feel so scared and alone and i don't know what to do
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