Hey I just wanted to see if anyone else here has PoTS? I’m 17 and haven’t been able to go to school this year (my senior year) because of my PoTS (I have other illnesses but my pots is the worst right now). It’s continuously getting worse and I can barely function. My doctor won’t fill out the form for a Homebound Education system so I am currently not in any school at all. Today my doctor told me (for the 7th time) to just drink more water and salt my foods even though I’ve been doing that for months and I’m getting worse. I suggested the idea of IV saline treatment, but she shot it down. She says I’m not trying hard enough and that I need to actually help myself. I’m very frustrated and very sick so I was wondering if anyone has any advice

UPDATE: I’ve gone to the Mayo Clinic about 4 times now, and after being certain POTS was definitely something I have, they had me take the tilt table test and somehow the results came back totally normal even though other tests similar to the TTT have never ever been close to normal. I read somewhere that 30% of TTT results are false negatives and I strongly believe mine was, but most people in my life have given up and are done trying to help me figure this out. People say that these are all the answers we’re going to get, and what’s the point of a diagnosis anyway, and I should just see a therapist 😒

The doctor at Mayo said that I was sort of on the spectrum for things like MCTD or EDS, but she said she didn’t think I had a connective tissue disorder according to the Beighton scale, even though I score an 8/9 on it and ive had joint issues all my life. Overall I’m very frustrated and want to keep fighting for answers and treatment, but almost no one is willing to help any more and I feel like maybe I should just give up.