Anyone out there have variegated porphyria while pregnant or while trying to get pregnant?

I have been trying to get pregnant for almost 3 years and went to see a specialist and did everything they asked found out I have anemia. But it's not for insufficient iron, I have too much iron and they found out I have variegated porphyria. But I'm still new to this and don't know how to fix the anemia and about this thing I have can anyone help me out there?