HEART DEFECTS

Amanda

I’m searching for someone with the heart defect PAPVC, which stands for Partial anomalous pulmonary venous connection. I have it myself, and it effects a very small population of people. I’ve looked online for forums with people who have it, but cannot find any. So, I’ve decided to post on many forums to find someone with this. I just want to ask a few questions and be connected with someone who has it also. I have never talk to or met someone with defect. So, if your mom, sister, friend, or anyone you know has it and is okay with being reached out to, I would so appreciate it. I don’t really want to post my number or email, so if anybody does find someone, I’ll comment my Instagram to get in contact.