HLHS and it's side effects

Dawn • 25 years old. Married. Mother to a girl & one on the way!

My son was born in May diagnosed with Hypoplastic Left Heart Syndrome. He was in the NICU for 5 days after he was born and we were able to come home for a week and a half before he had his first open heart surgery. Ever since being home we've struggled with feeds & gaining weight. Has anyone else had any experience with this & have any other advice for me? I've met with a dietician and we've just started higher calorie formula. I just need someone to talk to who can relate. Picture posted for attention of my little guy ☺️