Im high risk due to having a rare genetic condition called Hereditary Angioedema. It can be caused by mutation of the C Inhibitors in your blood, or from lacking them. In my family we have the rarest form where we are missing both C2 and C3 inhibitors.

This disease causes us to swell internally from individual-specific triggers. There is only one drug that is being trialed currently that can potentially take the swelling down- my aunt and cousin are in the test group for it.

I was a souly internal sweller in my bowels/intestines for my entire life until I got pregnant and ended up swelling external in my hands tol. My attacks are triggered by stress and trauma. Ive been lucky to only have 4 attacks so far this pregnancy, two of which were internal but our sweet baby girl did wonderful through them.

There is a 50/50 chance that she’ll be born with this horrendously painful illness. Im praying that it skips her by some grace of god.

I guess theres no real point to this post- it just gets old feeling like im alone. My OB’s (both reg and high risk) have done a tremendous job trying to understand whats happening with my body and how to keep both myself and the baby safe. What put it in perspective for me was them telling me (at the largest research hospital in our state, UofM) that the ONLY other prenancy/angio cases they can pull information from are my aunts when she was pregnant with my 3 cousins- during which she didnt have any attacks. I was the first pregnant angio attack in their records😕