EDS diagnosis, finally

Johanna • 20 • chronically ill mess

After countless doctors and several visits consisting of doctors refusing to listen to me, my rheumatologist finally listened and said I have Ehlers Danlos Syndrome, which is something I’ve been trying to ask about for so long. I deal with a lot of other chronic illnesses that were extremely difficult to figure out and I figured I would never get an answer about my joint issues but I finally did. Although there’s not really much they can do treatment wise, it’s really validating to get a diagnosis.