Autoimmune

COMMENT (12)

Posted at Tue, Sep 18 2018

Expect a lot of blood work. A lot. Pricking, poking, “Does this hurt?” I’ve been to many, and I’m only 16. Questions and I recommend writing down any questions you have for him/her that you might forget during the appointment. Don’t think any question is too silly. They might put you on a medication for it and recommend you see a kidney, heart, lung, etc specialist.

8 Upvotes

Am • Sep 27, 2018

Thank you, I hope you are too. There’s so many young people with autoimmune diseases no one knows cares to learn about.

Ruby • Sep 27, 2018

I'm sorry you have to deal with that. I'm 17 and I have an autoimmune disease that affects my kidneys. I felt like I'd never meet someone as young as me dealing with all of this, so it's comforting to see I'm not the only one. I hope you're okay❤️

Madison • Sep 18, 2018

Thank you ! I came back positive for either biliary cirrhosis, crest syndrome or Sjogren syndrome

Posted at Sat, Oct 27 2018

I have Multiple Sclerosis. I used to take Gilenya which is a pill instead of a shot. It works really well for me. Expect bloodwork and MRI’s. I get MRI’s with contrast so there’s another needle. I don’t take Gilenya anymore because I’m 4 weeks pregnant. Best of luck to you, be brave and live in the moment ❤️

2 Upvotes

Posted at Wed, Oct 10 2018

I have rheumatoid arthritis and I'm currently taking enbrel auto injector and 800mg ibuprofen and I've had R.A for 6yrs now, I now have two rainbow babies who are 3 and 4 yrs old and am trying for another but can't get pregnant..... And yes shots shots shots, and as for me I don't like needles but have to take my enbrel twice a week and I work.....

2 Upvotes

april • Nov 6, 2018

OMG.... I'm just gonna be on what your on..... I hope things are OK when I get on it, currently found out today I'm pregnant and very emotional .... Happy but OK. Wished I can chat with us more about this drug cimizia? Maybe on here but who knows when I get to use my phone, my little girl always uses my phone I don't mind either but I shall get back to your replies...

Tasha • Nov 4, 2018

I get cimizia injections once a month in my thighs and is on methotrexate...take 8of those every friday. Rheumy told me i have to get off of the methatrexate 3 months in advance before ttc. 🤦🏾‍♀️

Posted at Sun, Apr 14 2019

Hey I know this old but I’m dealing with the same. What labs were out of range for you?

Upvote

Madison • Apr 15, 2019

I’m not even sure ! Tbh almost all of mine were out of whack

Posted at Wed, Sep 19 2018

It depends on what they tested for? They run multiple test. I have lupus and it was a long battle

Upvote

Madison • Sep 19, 2018

I came back for either crest syndrome biliary cirrhosis or sjrogens syndrom

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