Fear of the unknown.. possible kidney issues..

Jessica

Everything with this pregnancy was going great up until my 20 week ultrasound... I was diagnosed with hypertension. I don’t really feel that diagnosis was accurate. I don’t like going to the doctors as it is so my blood pressure always spikes when I’m in there (white coat syndrome). I take it at home and it’s always within a normal range. But my doctors seem to all refuse to believe that. It was also around this time they figured out my little man has a two vessel cord or what they call SUA (single umbilical artery). Meaning instead of a normal 3 vessel cord (2 arteries and one vein), his only has 2 vessels (one artery and one vein). Since then everything has basically just been up in the air. My family doctor referred me to see a maternal/fetal medicine specialist because having SUA can range from nothing to worry about to an array of issues mainly but not limited to baby’s heart and kidneys.. Anyways I’ve been seeing the specialist and at first the kidneys were fine, baby just wouldn’t cooperate to get good pictures of his heart. So I had to come back in about a month. The next visit his heart looks good but the doctor says his kidneys look enlarged and “bright”. Well what the hell does that mean? So I have to come back yet again a month later. This time his kidneys still look enlarged and bright. The doctor himself said that his kidneys are obviously working otherwise there would be reduced fluid around him seeing as now it’s pretty much all baby’s pee. But he also mentioned something about infantile polycystic kidney disease. I think that’s what he called it. I understand they can only tell you so much through ultrasound and while baby is still in utero, but all the unknown what ifs, could be’s, or might be’s is driving me insane. He wants him to see a pediatrician and neonatologist when he’s born (they’re inducing me at 39 weeks - May 1st or possibly earlier due to suspicions of preeclampsia).

I feel like I’m getting so worked up and it’ll turn out to be nothing. I need someone to say something other than “it’ll be okay, I’m sure he’s fine”... cuz what if it’s not.. depending how bad this is my son could either live or die... Wondering if anyone’s experienced anything like that or knows someone who has? How did it pan out for your baby(s) with potential kidney problems ?