This disease is more prevalent than all childhood cancers combined and still is not well known. Every 30 minutes a child is born who will end up diagnosed with this disease. It is degenerative and has no cure. If you search umdf.org there is a LOT of information available. It's devastating to know that so many angels were taken by this disease and still so many people have never heard of it. Please just read a bit about it and raise awareness for all the precious children and brave adults fighting this horrible disease.