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We just went through the same thing. We found out last week our baby had exencephaly. After seeing a specialist, we ended up ending the pregnancy two days ago. I was 16 weeks. I feel like I aged 10 years in the last week and a half with everything going on. I'm here if you need to talk.
Utterly lost
I am 13 weeks pregnant with our rainbow baby.
Last week we went for our 12 week scan and were told our baby as a fatal abnormality. It won’t survive outside of the womb.
I am now booked in for a medical termination (hate that word) next week.
After long discussions with the drs, my husband and family we know we are doing what is best for the baby.
I am lost though. Totally heartbroken. I have no more tears left to cry. I’m not looking for sympathy but I just don’t know where to turn to at the moment. Our baby has a condition that is so rare that only 1 in 100,000 women go through it.
The drs say at least you can get pregnant and you are young. But it seems I can’t stay pregnant.
Life has changed so much in a week. We were so happy and now once again our life has fallen apart.
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Your doctor also sounds like an asshole you cant just tell a woman oh at least you can get pregnant again. No that's fucked up. It's not the same. I hated it when someone said that after my miscarriages. I would have decked the dr. (Sorry I am really bicthy when I see that drs just say things like that) but if your baby dose have that thing I am so so so sorry *sends hugs*
I was born at 26 weeks and doctor's told my mother that I wouldn't survive or if I did i would be slow.I weighed a pound and 12 ounces, and my family is surprised I haven't had any complications in my pregnancy. I wish you the best, I know how hard it can be to lose a child. I had my first at 15 and I gave him to a nice family who agreed to spoil him and love him, they couldn't conceive, and I was their last hope for a baby. He's 3 now, and she sends me photos sometimes.
My prayers are with you. I've been through this as well. My first pregnancy was lost to trisomy 13, a condition that's very rare as well. The Terminating for Medical Reasons board helped me through a lot in the weeks after everything happened. You will find a lot of support from women who have gone through a similar situation. Lots of love and hugs.
I'm so sorry, that's a decision nobody wants to make. I felt so lost after my first miscarriage and was so upset by my first OBGUN treating it as no big deal and saying, "oh I'm sure I'll see you here again in a few months". I switched medical teams and am now so much happier with the care I receive. Much love to you with this grief and I hope that you have support in this long healing journey. 💗
You know that doctors can be wrong if you go over to birth story's there are tons of people who have been told that their babies wont make it outside the womb and they all are just fine. I would get multiple opinions before going with the termination. The baby could be just fine and the ultrasound equipment could be messed up. They told me the same thing and tried to get me to terminate I didn't I got multiple other opinions and multiple ultrasounds to find out that m yuh baby was just fine then the other place called and told me that the equipment was having errors I am now 37 weeks
La
Yeah it is mermaid syndrome. We are having a funeral for the baby. The hospital have been amazingly supportive and are sorting everything out. I don’t think the dr meant the comment in a mean way, she was trying to help and no one knows the right things to say in these situations. It’s just so crap.
an
Dont let them keep him/her like plan a funeral
an
Oh I am so sorry like so so so so sorry. I think non medical people call that mermaid syndrome I am sorry mama.
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