Benlysta - Lupus Warrior!

Hiya! My name is Chiara. Everyone calls me chichi. I’m twenty four years old, I play video games a lot on twitch as a hobby and I also have Lupus which has effected me since I was twelve. I was recently put on Benlysta and well I am fairly concerned and not sure if I’m experiencing symptoms of this medication or of something else just Lupus related... I have told my doctor but my doctor is convinced I’m just naming the symptoms of the batt 🙄 which is so annoying. Anyway, some days I’m waking up with headaches so bad I can’t lift my head off the pillow and I’m nauseous all day no matter how much Zofran I take as prescribed - I even smoke medicinal mariujana to help me eat otherwise I have NO APPITITE and it’s really annoying because smoking hurts my lungs - I don’t have money to afford tinctures and pills of THC bc ‘Mercia. Lol. Anyways, I’m just nervous should I like take a Xanax and wait longer before freaking out? Lol I’m on my fourth injection, the first one I had I had itchiness and took benydrl to help sooth that. Now I just get headaches and nausea, sometimes dizziness, and I never have an appetite. Thanks for all the help xoxo

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