Children with Chiari Malformations
I was just wondering if there are any parents on here who have dealt with their child having a Chiari. My daughter has type 1 and two syrinx. I’ve reached out to support groups but never hear anything back. My daughters doctor said she’s had one of the most “significant” ones he’s ever seen. She had surgery last August but the syrinx still remain. Just wondering if anyone else or their children have one and how it’s affected or affects them.
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