Endometriosis stories? I was recently diagnosed. :(

Question

Hey everyone!
My hubby and I have been TTC for 2 years now. I finally went to a specialist who diagnosed me with Endometriosis. Apparently it has caused scarring to both of my fallopian tubes preventing eggs from meeting the sperm. Since my diagnoses I've felt so sad and alone in this. I've been told I cannot conceive without IVF.
Anyone else have Endo and can share their story? Any success stories?
Having Endo is such a broken, lonely feeling. Everyone else I know seems to get pregnant so easily.
Thank you ladies!

Answer

I have endometriosis and pcos and I'm so lucky to be pregnant with my 3rd baby. It was not easy getting pregnant with any of them ive done iuis that failed and tons of rounds of Clomid and femara that didnt do any thing but I definitely feel like I'm super lucky to have gotten pregnant this many times with my conditions. I sure hope you have a baby of your own one day its hard living with an incurable disease

Answer

I have mild endo with one tube damaged. They cleared it but it blocked back up again few months later. Even with one tube never been pregnant and we’ve done ivf. It’s worth it. We have 2 snowflakes waiting for us (FET in September).

Answer

I just had surgery to clear both tubes. Dr was unsure if he was going to be able to save them, but he did. Said only reason he left them was because I’m 31 and have no kids yet. Gave us a couple months at home to try on our own, if nothing happens, IVF is the next step. This month marks the last month of us trying, just waiting for my next appointment now to figure out what to do next. Good luck to you!

Answer

I have endo all the way down to my vaginal wall. I’ve been wondering for the last 2 years why intercourse was so excruciatingly painful. 😞 I’m also doing IVF in November but that’s due to my age (42)

Answer

Can’t they just clear it all out? A really close friend of mine has it and she literally just had surgery Monday to remove all of hers so she can try to get pregnant. 
I will say she has had two pregnancies although sadly she lost both of them. 
Don’t give up hope. Look for a specialist in your area.

Answer

I will be having surgery next month to clear out all the tissue and make sure my tubes aren't blocked so we can hopefully have a baby. TTC for 2 years as well-everything looks great on paper and no one can tell me what's wrong. Been going to a fertility dr for almost a year now. Finally asked for an HSG and got my probable diagnosis of endo from that and all my symptoms. It's awful. I never thought this would be me. I'm terrified the surgery won't change anything and I'll never be a mother. At the very least my quality of life should be better without all the pain. Fingers crossed! Would love to hear success stories to keep me going during this time. I'll be 35 this year and just feel like my time is running out.

Endometriosis stories? I was recently diagnosed. :(

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