Well here I am ready to tell my story, I'm not sure If many people will read it but for my closure i want to tell my story. My husband and i started dating when i was 15 and he was 18 we went to high school together and after graduating high school 2016 that year we got engaged💍💎. We got a house in 2017 and then in January 2018 we started trying to get pregnant and we got married in may 2018. Throughout this process I never miscarried had any faint lines NOTHING💏. So december 2018 I want to see my obgyn. He did a pap and put me on clomid. NO other testing whatsoever. He wanted me on it for 6 months and only did one test the month after I started them to see if I ovulated , he said it showed I did and didn't want to see me or have me call unless I started my period or got pregnant. The month I stopped taking the clomid I started getting this very annoying heart beat in my left ear. I went to 3 different doctors who said I had an ear infection first time she put me on amoxicillin then the next time I came in she put me on prednisone but nothing made a difference . I then when to my family doctor and she said she didn't know what was wrong so she sent me to a ENT specialist. They ran a bunch of tests and said they thought I should get an mri to see if I had a tumor in my ear or something. It took a MONTH to get that mri and in the mean time in July I started getting really uncomfortable neck and back pains. In August it just kept getting worse and worse and finally I was able to get my mri scheduled because it needed preauthorized. By the end of August I was in so much pain I couldn't stand it and finally I called off work because it was so bad my vision was completely messing up. I drove my self to the er 2 times and the first time they said I had occipital neuralgia and I asked about my vision and without doing any testing he said the nerves around my eyes get inflamed and it causes you to not be able to see, he gave me tramadol and a prednisone shot and sent me home. At this point I knew I needed help but didn't know what to do. I stayed in bed and was no longer able to get on my phone. I was getting intense nausea and the pain pills I had did nothing. I also was prescribed norco at the second er visit when they said i just had a head ache. I couldn't eat,sleep and just tried to lay there and not move. I finally got in to see my family doctor and my blood pressure was in 160s and I told her aBout my vision issues and she told me to go see my eye doctor so that same day I went to my doctor because thankfully they took me seriously. They did a bunch of testing and found hemorrhaging and papladema (pressure) in both my eyes. They said I needed to be immediately seen by a neurologist because I could go blind. 2 days later I was seen by a neurologist who had no records of me becuase my doctor never sent them and told me I needed a emergency lumber tap but would have to go back home to get it( an 1hour 30 min) drive back I went home and went straight to the er and was put on morphine they did a ct scan and sent me home after I relayed all of that info to them they said I was not able to get a lumbar tap there and said they saw no hemorrhaging in my eyes. 🤦‍♀️🤷‍♀️ I had multiple types of nausea meds and i still threw up. They said I had a head ache. I had it at that point and went to a different hospital 1hour and 15 min away. They did a mri MRv ct scans and found nothing so they diagnosed me with idiopathic intracranial hypertension. They did a lumbar tap and I still couldn't see so I was as referred to a ophthalmologist. When I seen him my right eye was seeing 200. I was completely blind in that eye and they wanted to refer me to a surgeon the next day I went and seen him and he scheduled me for a optic nerve fenestration to release the pressure on both eyes that next week. I ended up in the hospital until that surgery cause I couldn't keep anything down including the meds that were saving what was left of my eye sight. I got the surgery and started trying to heal thinking i had this disease. Well 2 weeks later I ended up in a different er because I could feel the pressure in my head building again. They transferred me to a different hospital after doing another lumbar tap and it being so high again. Once at this new hospital they did another mri mrv and finally saw blood clots.🙍‍♀️ In my transverse sinuses the smal veins in my brain and my jugular vein on my left side of my neck. I was there a week and they finally go to transport me to a different hospital in tertiary care.🏨 I was in this hospital for another week getting used to blood thinners and being closely monitored. I finally had an answer to why I felt like this. There is so much that goes through my head and thinking what could have happend . I am now blind in my right eye and have alot of anxiety. I lost 25 pounds in 2months and am still recovering. If you made it to the bottom of this I greatly appreciate you taking the time to read through❤ we now are unaware of what will happen for the future in trying to get pregnant but because of the clomid we are now being referred to a reproductive endocrinologis to see what options we have. I know clomid doesn't normally do this to people but there is a chance it can so be aware ladies.

After my eye surgery I got a hematoma (blood collects in eye ) had severe swelling and my eye looked like that for a month

For a very long time I couldn't lift my eye so it just stayed shut

Looks okay now