Any Been told their baby could have this? My son has enlarged kidneys and is big in general 7lbs at 34 and 2 . They say his tongue maybe a little enlarged to but one ultrasound they said his tongue was fine today they seen it again somewhat out of his mouth. Anyone’s older kids end up Not having it and is fine? The genetic testing we had early on was all low risk. This just became a thing the last month and a half. Looks scary but trying not to worry. My 11 yr old was said to have a cyst on her brain but it was never seen again at birth. Pls share even if it’s not this particular issue. Just needing some hope that they are over dx things . Thanks