My 16 month old has sma type 2

Am

We noticed some concerns that we had about him not bearing weight on his legs and missing milestones that he should have been hitting in the last 6-8 months. After testing done we have learned recently that Grayson has been diagnosed with SMA (Spinal Muscular Atrophy) Type 2. SMA is a terrible genetic condition that we had no clue about since it does not run in either of our families but found out recently that we are both carriers of for whatever reason which makes it a 25% chance for our children to be born with SMA. It is a disease where there is a deletion in Graysons case or a mutation of the SMN1 and copies of the SMN2 gene in Graysons case he has 3 copies of the SMN2 gene. The SMN1 gene is vital to build muscle and meet the milestones he’s been missing, without it the brain doesn’t send signals to the muscles like it should and they eventually can wither away until he can’t move them at all. It is a progressive disease that without treatment can be devastating. We are starting treatment as soon as possible 💙🙏