Any other moms here can tell me if their little one was diagnosed with sever flat head who didn’t end up getting the helmet and your babies head got better on it’s own? My story is a little different and I don’t know what to do.

My son is going to be 8 months in a few days and was diagnosed with sever flat head. I’m a first time mom and didn’t realize how much tummy time was needed. No one told us while being stuck inside the house since he was born because the cases of covid in our city is high. At 4 months the Paediatrician dr. Recommend getting him a helmet and I desperately wanted to go ahead with it because I feel so bad. He was born with a perfect shape head but because the drs. Left him in too long during labour 36 hour labour then an emergency c section it caused fluid to build up at the top of his head. He’s already had 2 ultrasounds and 1 MRI and will need another MRI later sometime this year to see if it’s going away or not. That is delayed because of covid and short staff. He’s perfect and it hasn’t caused any issues for him or delays but no dr can tell me if it’s safe to go ahead with the helmet even though he has fluid. I cry so much and have so much bad depression and anxiety because I just want him to be ok but I feel like I failed him not getting him off his head more before he was 4 months old and when I brought it up to the Paediatrician at his 2 months appointment I had noticed a little dent she brushed it off like it was no big deal and didn’t tell us to really try and keep him off his head during the day. He has been off his head now during the day since he was 4 months old and honestly I feel like it’s gotten worse instead of better. He was suppose to have it put on at Christmas but I can’t reach a dr that will tell me if it’s ok and safe to put the helmet with his fluid there because they don’t have enough study on it to say it is or not. I’m so so stressed and torn because I know time is running out to have it put on. I would not have even hesitated when he was 4 months old to have it put on if it was for the build up fluid on the top of his head. I also know myself and wouldn’t want to say what if it would have worked and got better with the helmet and I should have done it. And right now the only thing that’s stopping me is the fluid issue and I know how more important that is then cosmetic but I don’t want him growing up with such a flat skull either and I tried everything I could to help him :( .

The neurologist won’t even see us until March and he only saw him back in October to book his MRI which he had done in November and he hasn’t gone over the results with me and won’t till March. I can’t get straight answers from anyone and time is running out for him to get it because he’s 8 months old now. I cry so much and wish someone could tell me it’s ok to go ahead with it and it won’t be a problem.

Sorry for such a long speech. I haven’t been able to talk to anyone about it. The children’s hospital won’t even do helmets anymore and no longer recommend them because they don’t feel they work but some of the hospitals still do. So many mixed reviews on helmets and it’s giving me stress and anxiety . I really don’t know what to do . I’m so lost and just want to help my baby boy and for him to be ok 😞 . He has an appointment once a month to measure his head at the drs office to make sure it’s not growing too fast because it’s more then the average size right now and we want to make sure it’s not the fluid that’s causing rapid growth. 😞

I just would love to hear more stories about sever cases that didn’t require helmet or didn’t get one done and the skull shaped back to normal. If I could see lots of more stories like this it would make me feel a lot better and help with trying to make a decision