Moms with lupus

I just saw Dr 2 days ago and he suspects lupus due to malar rash on my face. When I look at the details I am more convinced I have it because I have other symptoms. I get tested next week. But I have worries. I wish I could go to a place to talk to other people with lupus.

How do you work if you have a flare up? When my rash showed up I was miserable it was hot itchy and it burned and I had to slather shes butter all over my face. I felt like shit.

Also I worry about if something happens to me leaving my daughter behind. I just have worries and wish I had a friend to ask or a community. Anyone out there who can give me more insight on their lupus?