Sinus venosus

M

It was discovered with in 24 hours of my son being born he has a hold in his heart it will require surgery but not till he is 2,3,4 or 5. I was wondering if any other parents have experienced this…..it is the scariest thing i ever have had to deal with and looking for a little support. We are telling people yet until we met and have more tests done but we dont want our son to be treated differently