Endometrial Atypical Hyperplasia

Shay

I’m 25 and I have complex atypical hyperplasia of the endometrium. I was diagnosed a few years back and the goal is to have at least one child (or more if my body will allow it) then have a hysterectomy before this progresses to full blown cancer. Its rare for this to develop in someone as young as I am so it’s difficult to find success stories because many women were older and already had families when diagnosed so they carried on with the hysterectomy. There are few accounts that are similar to me (though they’re usually in their early 30’s) that start off fine but I later hear that they weren’t able to conceive and needed to proceed with the hysterectomy or they don’t update.

I’ve been through multiple D+C’s and multiple hormonal treatments (all of which have been carefully agreed upon by both my OB/GYN & GYN ONCOL) and after about two years straight I’m finally in the clear to start trying (my results from D+C cleared 3 times in a row). Now I’m in the process of trying by tracking my ovulations but of course my first period is extremely heavy and lasts about 3 weeks & now I’m period-less going on about 2 months. I understand this is a slow process and patience is needed but with my condition I only have a small window to conceive before the hyperplasia comes back and I’m stuck treating it again (I won’t be able to conceive while doing treatment it would be dangerous for the fetus).

I know I have other options if things take a turn for the worse but I am trying so hard to hold on to the dream of conceiving and giving birth. I’m normally very positive and good at keeping my moral up but… I’m struggling. I am seriously struggling with trying to hold myself together and the treatments really take a toll on me so I’m just trying to find hope. Has anyone gone through this condition and come out of it successfully? Or are you going through this as well? Our does anyone have any words of wisdom to boost my spirits? I’m tired and I feel like everyday my hopes are slowly dying (I know this sounds dramatic but this is truly how I’ve been feeling as of late).