who has endemetriosis

Question

what are your symptoms

Answer

Hi everyone, my name is Darian and I'm 35 now.  I was diagnosed at 17 with Endo.  My husband and I have been married for ten years and have never used any form of BC. We knew right away we both wanted children so began TTC right away.  Many years of trying and so many Dr's. and surgeries later.  Finally last year we saw a top Endo. specialist at UCLA and she diagnosed me with level for Endo.  We haven't completely given up but know that with our difficulties we will need further intervention which is not in our financial bracket at the moment.  Keep trucking everyone, you will find the light!

Answer

I was diagnosed with endometriosis when I was about 16, turns out it runs in my family. But I remember days where I couldn't walk the pain was so bad. So after my doctor put me on the depo shots, it helped a little, but everything changed once I had my surgery. They burnt the leasions off of the lining of my uterus and also found cysts on my ovaries. At that point in time I was young, but was certain that I wanted children one day. And now here I am, 4 years later no real symptoms, and trying to conceive, it's proving to be quite a challenge. I just had a doctors appointment and she suggested that I start taking prenatal vitamins and that they should help with making my body ready to carry. Hopefully everything works out. Fingers crossed!

Answer

I was diagnosed with endo via a laparoscopy one month after my 18th birthday. My pain was excruciating all month long, especially during AF, and although my doctor told me it was "normal" and then later, said it was "in my head", I knew my body better than that and pushed for a laparoscopy after doing my own research.  Turns out it was stage one.  I got an IUD in May of 2012 as recommended by my Naturopath; it was honestly the best thing for me and I would recommend it to any woman suffering with this disease.  I had it removed on August 18tg though, after my husband and I decided to start ttc for baby #1.  Now I lay here typing this out as AF is trying to kill me (ha ha, but I'm really not used to these horrid periods again after only having about four mild periods with the IUD).  The good news is that my cycle regulated immediately after IUD removal; I'm hoping that's a great sign and that I become pregnant soon.

Answer

I do. I was diagnosed after years of severe pain at 28 and had a lap. Then, at 30, another lap. It's a very painful and horrible disease. It has caused so many other issues for me. I'm thankful there is a group where you we can support each other! The only pain I can relate it to is when I had appendicitis.

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I'm 22 and I was diagnosed this year by symptoms due to many years of pain. When I first got my period at 13 we knew something wasn't right. The pain I experienced as well as the amount of bleeding was tremendous and I was out of school often. Everyone thought I'd grow out of it including my doctor, however, it got worse and worse. My IBS, which I've had since I was a kid, got exponentially worse due to endo as well as the lower back pain and cramping. I refuse to call it cramping unless I'm talking to a stranger because they are contractions. I've been pregnant once and after a 14 week miscarriage, that is when the contraction like pain started every month. I tried every BC except the IUD because I'm terrified of it. I'm currently on a high dose of BC pill called Yasmin. It's helping with the pain but the bleeding is still ridiculous. I'm hoping to have a laparoscopy before we TTC in two years to clear out the endo I have.

Answer

me :( my symptoms are mild pain all month round, almost feels like a small stitch. during my period they are extreme to the extent where I will vomit but are only that bad for the first 1-3 days. during period get lots of sharp stabbing pains in rectal area, going to the toilet is painful. sex can be painful in certain positions and also my period lasts for 6 days generally goes away for one day then get brown spotting for one more day. pretty annoying lol

Answer

I'm 19, I never really struggled with painful periods until I had a yeast infection in October of last year, and then suddenly my periods were so bad I couldn't get out of bed and I'd cry and throw up from pain. I have a sensitive stomach so I can't take pain killers of any kind. I was blown off from doctor to doctor for 3 months until I finally found a doctor who took me seriously and he got me in for a laporoscopy within a month. I had my laporoscopy in February of this year, all my implants were gluing my cervix and uterus together and were inside my uterus which explained the constant miscarriages I had had even when I was 14 up til present. My periods are still incredibly painful and they have only gotten heavier since the surgery. The one thing I always wanted to be and looked forward to was being a mother and having a big family. I'm having a really hard time coming to terms with the constant pain every month and the possibility of no children but I am trying to cope. 
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Answer

I do. I have severe pain all month round. Severe pain in my right lower side (I have endo on my appendix and am having it removed in October) along with terrible periods and sever pain that makes me sick to my stomach and unable to move. Even lying down hurts. I am currently on Visanne though which is making my pain very manageable and allowing me to not have as many bad days.

Answer

I do too :(

Answer

I do :(

who has endemetriosis

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