Do you have syringohydromyelia?

Cl
I got diagnosed with syringohydromyelia. 
​It's a cavity that forms inside a nerve in the neck and filled with fluid. It has variety of symptoms from tense shoulders to severe burning and awkward sensations from shoulders to hands. 
​Syringohydromyelia keeps growing and in most cases has to be removed with surgery, but I'm scared about it since if left untreated it can slowly start causing paralysis to some parts of your arms. And neck surgery is always risky
​Has anybody ever gotten Syringohydromyelia? Or siringomyelia? 

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