How did you deal with the diagnosis?

Question

I have been a whirlwind of emotions since my doctor diagnosed me with endo. I am angry, depressed, and everything in between. Plus, I physically hurt like a mother! At least my husband isn't completely blowing my crippling pain off as being overly dramatic anymore, but how did you deal with the news? Weren't you terrified? I just started getting symptoms this past February and they keep getting dramatically worse each month and I don't know how I can take it emotionally, psychologically, physically, especially while TTC with IVF. How did y'all cope with the diagnosis? How do you cope just with daily living? Like not completely being layed out every period and missing work?

Answer

My first reaction was he's wrong, the doctor is wrong. I was so mad. We had been TTC for a long time and it seemed like something was in the water for everyone but us. I was very frustrated that it was my fault for not having a body that worked right. It was a big pill to swollow but we wanted kids so I had to suck it up and accept it. All the tests and procedures proved it, there was nothing else to doubt.

After talking in more detail to our RE, we learned IVF was pretty much the option if we wanted kids. We couldn't afford it but my parents stepped in and helped make one round possible. It was expensive!!! While I ended up being a poor responder, we still were able to transfer back two eggs and one stuck. I am now 10w3d pregnant.

While IVF is definitely not something to take lightly, we feel very blessed to have a little super star on the way so our dream of kids is coming true. We will possibly have to do IVF again to get pregnant to have a second child which is less than a fun thought but it only takes one egg. We will forever be able to really tell our little star how much we wanted them.

Endo is hard to accept but great communities like this make you feel like one of many dealing with it. Many folks here understand and truly helped me accept things. Find your way and figure out what you want to do, what is best for you, no one will be able to tell you what path that is. Good luck!!!

Answer

I struggle with this every day. I was diagnosed 12 years ago at 15 yrs old and never really considered the implications. Now I'm 27 almost 28 and have been ttc with my husband for 8 months. On top of it, my doctor has confirmed I'm not ovulating so it continues to add to the stress.

I find that talking to others on here helps. I also have 2 close friends that I call regularly to just vent and cry to. One just had her baby by IVF so she can relate and the other is just an amazing person and allows me to cry and complain.

I've tried to stay busy- my house is the cleanest it's ever been lol. I am reading for pleasure again because I allows me to escape reality for a few hours.

As far as the pain-
My pain has actually gotten better since getting off of birth control. But I deal with fatigue, bloating and chronic constipation daily because of endo. Quite frustrating!!

Hang in there. You're not alone.

Answer

I got diagnosed at 11 years old and it was awful I had to have surgery and the pain was so bad I would pass out at school. I was sad that the doctor told me I would never be able to have children(yet I just had a unplanned pregnancy dealt with). Endo affects everyone differently but it doesn't define your life and can be managed !

Answer

I was dx with endo in 2011 from laparoscopy (I was 19.) I've had crippling period pain from pain during sex, cramping to where I cannot get out of bed and I'm crying in pain, diarrhea, vomiting, migraines, dizziness. You name a symptom, I had it. My dr was convinced I didn't have it bc I was so young but id been having these problems since I was 15 and no broth control was helping (I also tried every bc known to man.) so we did the surgery and lo and behold I had it.
I didn't really care about the fertility problems then bc I was young and was not thinking about having children and I just finally wanted a diagnosis.

Sadly I had to have surgery again last year due to the adhesions coming back. The doctor said in bad cases it's normal to come back every 3 years (lucky me.) the sad thing is now I am married and wanting to have children so the fertility problems are hitting me now.

What I've found that helps me the most is not obsessing on it. Just trying to 'have fun' trying to conceive with my hubby. Of course I have my days but I'm just trying to enjoy life as it is and stay positive.

Sorry this is so long! Hope I helped.

How did you deal with the diagnosis?

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