I lost my son at 21 weeks. His kidney had become completely cystic & the other kidney did not form. The sac did not have any amniotic fluid & our son passed away. I just got the results of my genetic testing & I was positive to be a carrier for Bardet Beidl Syndrome which can cause kidney abnormalities among other things. My fiance is getting testes as well. My question is, has anyone had this? Has anyone had any positive outcomes? So heart broken right now.