Diagnosed with rare hereditary chromosomal disorder

I am 27 weeks and carrying a baby boy with multiple abnormalities. Unfortunately we have found out that I am a carrier for a hereditary disorder called TARP syndrome. Our baby Oliver has tested positive for this syndrome and unfortunately is medically labeled as "incompatible with life". We refuse to accept that death sentence though and plan on fighting for his life. I wanted to give an update since I know a few of you have been following our story. Also, Oliver is still as handsome as ever.❤️