MCTD and trigeminal neuralgia anyone?

Question

I am trying to find other people with mixed connective tissue disease and or trigeminal neuralgia. I don't know anyone else with it. I would really like to find someone who understands.

Answer

I have TN!

Answer

I have MCTD not the other one

Answer

I have TN just saw my surgeon on Monday and been told both nerves on each side is tangled round main artery so I need to have 2 MVD surgeries xxx

Answer

I have fibromyalgia and neurological issues that my specialists have been trying to figure out for the past year.

Answer

my dad has trigrminal neuralgia and I get the same head stabbing pain. I am so sorry you experience it too, I know it is rough and most people just don't get it. I have been seeking a diagnosis for a few years now... probably Multiple Sclerosis. but could be Lyme disease or a combo of TN and something else neurological.

Answer

My mom has been dealing with trigeminal neuralgia pretty much my entire life

MCTD and trigeminal neuralgia anyone?

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