Eczema down there😞

Okay so i have eczema on the lip of my vagina. I was born with it and in my 21 years no Dr has ever been able to help me. I've tried cortisone cream, lidocaine cream, steroid cream, etc. I've even asked about cutting the skin off of that lip and having it reconstructed with a skin graft... It is so bad I cannot walk a lot of days and wearing clothes hurts so damn bad. My husband and I are trying for a baby, of course having sex hurts, but we are trying. I guess I'm wondering if anyone else has it there? Can you tell me what helps you? I'm sharing this anonymously because I am so embarrassed about it. Please no negative comments, this is something I cannot help.