Deaf or Hard of Hearing Moms

Taryn • Married to the most amazing man in the world! :) Trying to conceive our first baby. His 3rd & my 1st - Currently on Clomid 50mg - PCOS affects my fertility - Liberty University- Ultra Conservative Right Wing Republican- Trump Train

Hi ladies,

I've always had really, really bad ear infections. I have multiple ear infections a month and it has caused all kinds of havoc on my hearing. I'm currently at the current hearing level of roughly a 60-70 yr old. To make matters worse, I've learned that I have Meniere's Disease and it will result in total deafness.

I was taught the alphabet in ASL when I was in kindergarten and I remember it. I can also count on ASL. I'm just finding it kind of hard to learn what feels like a whole different language. At this moment I'm stuck in this lonely world somewhere between the hearing and the deaf. Everything is horribly muffled and I end up feeling stupid when I don't understand what someone says, so I only ask them to delete themselves once and then I just go along pretending I heard it.

Neither my family nor my husband truly seem to understand where I am currently at in my life and no one seems interested in learning ASL. I am currently on clomid as my husband and I want a family. However, now I'm incredibly scared of this. The thought of not hearing my baby cry or it's sweet little voice as it learns to speak is heartbreaking. I'm also afraid something will be wrong and I won't know it. I don't know if this is a passable condition, but I don't want my children to have to live with this issue either.

Ladies, I feel very apprehensive now. Are there any deaf moms, hard of hearing moms, or anyone else with Ménière's disease that may could provide some insight as to how you deal with daily life with kids?

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COMMENT (3)

Ch

Posted at
Do you have hearing aids? Mine help SO much and I couldn't imagine life without them. Making sure your SO understands what you're going through is important. I had to try and demonstrate with my boyfriend how I hear without my hearings before he finally understood. Your SO will also have to learn to be your ears. Every time anyone says my name, or tries talking to me my boyfriend automatically nudges me to make sure I'm listening and can hear. With kids it's the same. Every "MOM!" You'll need a nudge and eventually you'll have to teach your kiddos to speak up around you. But I definitely suggest looking into getting hearing aids. It's hard, but we can get through it!

Le

Posted at
My grandparents are deaf and had 5 kids, one also being deaf. The technology & ways have differed from way back then to now ! Research ! As for ASL it's the easiest language to learn, that's why it's taught in some schools/daycares. My son started signing at 1.5 years old just from us showing him basic sign. I cannot say I feel your frustration with your family but maybe find a support group ? Maybe a website? You're not the only one my dear💞

J

Posted at
I'm sorry you're struggling with this, I can imagine it's very difficult to feel like you're slowly losing one of your senses. Things will be a lot harder to learn as an adult of course, but I think it would be important for you to try your hardest to learn as much ASL as possible. Although I am of hearing and I don't have anyone deaf in my immediate circle, there are soooo many parents out there that are deaf or hard of hearing and they somehow make it work! There's ways around it. Being deaf isn't the end of the world, you will have to adapt definitely and learn, but it's not the worst thing. There's a whole community out there that knows exactly what you're going through. Try imbedding yourself into the community and make some new friends, find support. And I can tell you the more you're around ASL the faster you will learn it! Just like any other language. I wish you well and hope you can feel better about your situation