Any ICP mamas in here?

Question

I’m waiting on bile acid results still but my midwife doesn’t feel great about this being anything other than ICP 😬
Looking for help with symptoms, things I need to advocate for, things I should be aware of, anecdotes about induction and how long you were allowed to carry? 
Trying to wrap my head around a second high risk pregnancy (I had PreE with my daughter 5 years ago)

Answer

Anyone have all over itching? My palms will it’s sometimes but mostly it’s up and down my arms and legs almost like poison ivy only, you know, ZERO skin rash 🙄 
I’m just wondering if it starts all over then localized? Or if the itching just takes different forms in different people?

Answer

I was diagnosed at 30 weeks had an emergency induction at 37 for fetal distress. My medication was not covered by my insurance so it was over $100 for a month’s supply. I started taking milk thistle and vitamin k as well to help. If you follow the high protein low fat low sugar diet the symptoms do get better. I ended up starting my maternity leave the week I was going to be 37 weeks to be prepared for an emergency induction. You need to become an expert on your baby’s regular patterns of movement and go in as soon as you notice something is out of the ordinary. I will also say that my son did have to spend a week in the nicu because he couldn’t maintain his body temperature and his blood sugars kept dropping.

Answer

I was diagnosed around 32-33 weeks. The plan was to be induced between 36 & 37 weeks. With pre eclampsia happening at the same time, we went with 36. 
You’ll need at least 2x a week Non stress tests. And I think I’ve seen that they recommend a weekly bio physical profile as well. You want to keep an eye on kick counts. And a rx for ursodial/actigal. 
There’s an FB group called icp care / itchy moms. Tons of great info and there is a website too with the recommendations for standard treatment - whether it’s mild or severe. 
Know that itching often starts before the bile acids rise, so be sure to advocate for weekly testing if they haven’t risen yet.

Any ICP mamas in here?

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