I have NF1, anyone else on here that has it? and have you had children and passed it down to them?
my sister has nf1 also and had a little boy and he didnt get it but is still a carrier..
im currently 5 weeks and i know the testing can be quite intrusive and can cause a risk so i dont want to have the test done.
Hope to hear from someone ( even if you dont have children are you worried about passing it on to them in the future)