Trust your mommy instinct!!

Hello everyone! I just wanted to tell you all to trust your mom instincts and know that you know your baby best! This past Monday my girl was fighting a cold which was actually RSV which led her immune system to be compromised and she contracted an extremely aggressive form of Staph and MRSA. I noticed her arm was a little red but my mom instinct told me something was wrong and to call the doctor. The doctor didn’t want to bring us in but my husband and I insisted on it. From the pediatric office we were sent to close hospital to start tests. The hospital we were at were not comfortable treating our girl so we were sent to a pediatric specialty hospital where they could better help us.

Saturday night after many tests and labs and constant crying from her we found out she had a serious case of staph that was in her blood stream and spreading throughout her body. It manifested in her arm and caused pus pockets in her bone which made her arm swell and we couldn’t move it. She had to be sedated for an MRI to get better images of her arm and what we were dealing with. We found out she has osteomyelitis. The staph is spreading into her lungs and chest and we are watching her now. She had an ECHO for her heart to see how bad the staph is.

After the MRI we had to go into emergency surgery to clear out the pus forming in her arm and get the infection cleared. They would also drill into her bone to sweep out everything they could as well as go into her chest and clean out what they could see. It was about an hour long surgery and we stayed up all hours of the night waiting for her to wake up from surgery.

As of now we as still have so many questions and are waiting for a lot of answers but I wanted to tell you all to advocate for your children!! You are their voice and you have to stick up for them. Be that annoying mom who calls the doctor every day to get in. When you know something is wrong you are right. You know your baby! Had I not called multiple times and demanded to be seen the infection could have been much worse and even more critical. Thank you for reading this far, we’re on the road to recovery now.

First picture at the hospital, this was 2 hours after the doctor, a very fast spread infection.

A few more hours later still spreading.

The night before surgery getting worse after it was getting better.

Right after the MRI, still waking up.

Prepping for surgery.

Right after surgery still sleeping from all the meds.