HELLO we are a Proud T21 family

HELLO we are a Proud T21 family! Our Ali was born at 35weeks 5days. She was only 4lbs 5 oz. Just this tiny little helpless beautiful person. When I was 15 weeks she was diagnosed with Hydrocephalus, yeah it was scary. We (My husband and Myself) went to see a Specualist at the NNU at CHOP. When we where 24 weeks. We then where told that she has had a bleed on the brain and now has extra fluid in her brain. Then was told of a Possible DS due to blimp on her heart. We went to see 2 more specialist for her heart inuratal. Her heart was PERFECT! (Amazed the doctors how well it worked due to the Hydrocephalus diagnosis) Fast fwd to 30 week scan, and was told she was Spinal bifida...now the doctors are concerned for my mental state but I'm okay. I opted to come back a week later at 31 WEEKS for an amnimo. At 32 weeks it was Confirmed that she has T21! Your feelings doing know where to go at that point. But what the doctor said next felt like a sharp nail under my ribs...."we are still able to terminate if that is something you want. We wouldn't expect a young mother like you to handle a child who wont enjoy life." I cried for I think a week. Everything was hopeless. But I kept moving. 2 times a week I would go for a heart monitor at fluid check.....fast fwd to 10/22/17 I went in as usual to my now routine nap time listening to her lovely tiny heart flutter with every movement.

I go in the back for my fluid check and she tells me my level is at 10....normally my low would be 18...I asked her if everything was fine she told me that if I have pain to go to the ER but until then just stay hydrated. Here's the day...10/27/17 I go in at 12 my normal time. They hook me up to the machine and 10 mins in I'm in pain. But just thinking it's because I've been driving....the nurse comes to me and checks my monitors. I had my 4 year old with me at this time. And she took me to the examination room to tell me that I was having my daughter. Came back to HUP 2 hours later after I was able to take my son to a sitter and my stuff for the hospital. We get there, my bestfriend is waiting for us on LD and I sit and wait for what is forever but 2 hours....but I was in too much pain they took me back and they couldn't fine her heart beat. You see my baby Girl lost almost at of her fluids. They little she had left she had tucked around her belly button. They pressed on my stomach and it felt like I was being hot with bricks. They rush me back and the last thing I remember was telling the anesthesiologist that I couldn't breathe you see they were trying to put an oxygen mask over my face while administering me morphine and I'm allergic to morphine. They placed a breathing tube in me and pushed my baby out. I dont remember much after that but waking up and being instructed to produce milk for my baby. I didnt get to see her until a full 24 hours. But when I seen her I melted. She was so small and perfect. Love has No disabilities! My daughter is 15 months old and she is walking taking 3 to 4 steps independently! No such thing as They can enjoy life! We are so proud and surprised everyday!