Ehlers Danlos Syndrome
Does anyone else have any form of eds? I was just confirmed by rheumatology that I need genetic testing for classical, I hade gone about a year with the diagnosis of hypermobile so now I’m finally going to get genetic testing to make sure. If you’ve had testing, what was it like? I’m honestly nervous for it...
Edit: I got the results back and I have clinically diagnosed hEDS and genetically I am a carrier for dEDS. My genetic variation had never been seen before in anyone with dEDS
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