Please help get answers for my little boy
This is a total long shot, & honesty am not even sure if I can post this. My son Leo had been sick since January 2018. He hasn’t gotten better even after a tracheal repair where they had to break his sternum. We still don’t have a diagnosis & I know ALL SORTS OF PEOPLE are active on here so maybe you guys have an idea.
-reoccurring bronculitus
-reoccurring pneumonia
-lots of drool, like totally excessive
-labored breathing
-high fevers
-turns blue/purple
-lump on right side lower stomach
-obstruction in kidney leading to high bp
-low oxygen stats sometimes in 70’s
-currently diagnosed with bronomalacia and tracheamalacia both minor
-no allergies
-crusty eyes
-sleeps absolutely perfect even when he’s icu bad
-13 admissions to the hospital in 2018
-3 ambulance rides
Wondering if you guys have any ideas on what we should be asked to be tested for? We leave for an out of state hospital in 2 weeks.
Also I’ll add my go fund me if you guys wish to donate
https://www.gofundme.com/tyssks-getting-answers-for-leo
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