I want to hear other people’s accounts of their experience with Endometriosis.

I have had ongoing issues with my menses for 6 years now, following removal of a contraceptive implant & one miscarriage at 2-3 weeks.

I will be honest and say that I have a history of drug and alcohol abuse, when I was in my late teens & early 20s. I’ve been overcoming those problems since I was 24, and nowadays I don’t even smoke cigarettes.

I am also a little overweight, but not too unfit.

I can run, swim, dance all night and keep up with many of my slim friends when it comes to sport/working out.

Since I had my IUD implant removed 6 years ago, I’ve never had a regular cycle.

Sometimes I have 2 periods in a month, sometimes I don’t have a period for 2 months!

Every period becomes more agonizing. I am nauseous and often vomit, I my legs hurt so much that I cannot walk, I become lightheaded & for the first two days I am essentially stuck on the toilet.

Not to mention the effect this has on my mental health.

I have seen several doctors over the years.

One set of blood tests revealed that my hormone levels are not abnormal.

An ultrasound revealed that I don’t have large cysts on my ovaries, although I believe these come and go?

I know that sometimes I have cysts, because I actually feel them rupturing. There is no mistaking that *pop* feeling and the pain which follows for a moment.

A male doctor tried to tell me that I just have a gas problem! Lol! 🤣

A second ultrasound revealed some abnormal endometrial lining growth outside of my uterus - which led to a somewhat unclear diagnosis of Endometriosis from a French male doctor.

I was never referred to a specialist, but told that I could manage my diet differently to combat the flare ups?!

This whole journey has been frustrating. It seems so hard to get real answers, without doctors being dismissive.

I have ended up dismissing it myself, and continuing on with the almost constant pelvic and lower back pains & the monthly torture of my periods.

I got married a year ago (this month), and my husband is at the point of talking about having children.

He is very understanding of my possible limitations - but it is starting to become a source of anxiety for me.

I would love to hear from others who have first hand or even second hand experience of Endometriosis.

What kinds of treatments have y’all tried?

What are your TTC success stories?!

If you’ve read this much, thanks for your time! 🥰