Finally 2 steps forward!!

Epic • Just taking it day by day.

This might not seem like much to a “normal” person but this is my first full day of work with no braces on my legs what so ever! I have Hypermobility Syndrome which in a sense is similar to hEDS as far as joints go. I’ve had to wear ankle, knee, and hip braces for months now and use a wheelchair quite frequently! But I got put on a heart medicine to lower my heart rate and I’ve been able to bike/walk everyday for about 30 minutes. I’ve built up enough muscle to not need my braces everyday! Granted I work a desk job and I’m still wearing high tops with an insole but hey it’s an improvement for me! I still use my chair when we go long distances or a lot of standing is involved but my goal is to be able to walk around at Renaissance festival this year.

I passed out on Friday due to my meds being off and I might need surgery to get a chip in my chest but hey minor setback compared to my legs improving! Sorry for such a long post I’m just so excited! 🤗🤗