Possibly TTTS UPDATE!!

Alyssa

Original post:

Today I go back to the doctor to see if the possibility of ttts has become greater or if we’ve reached the point where we have to leave state and go get surgery to give me little boys a chance. Cried for hours last night before going to sleep knowing nothing I did or didn’t do caused this but always that I can’t do anything for them. Doing the best I can to not get upset or think about it too much cause it’ll only upset me more at the thought that I might lose one or both of my baby boys.

Anyone else gone through this and have a positive experience? Any words of encouragement would help abundantly.

Update:

I went Cincinnati on Monday to have some test done and they said that we are currently not a candidate for the laser surgery, however they are concerned that I could become one in the next few weeks. So my boyfriend and I have to travel out of state again to do the same tests on Monday the 13th and hope that things have stayed the same or gotten better than what they were.

There is also some concern on baby b’s heart because of the extra fluid he continues to have weekly. It’s causing his heart walls to thicken and a part of it to become narrow, causing back flow through some of his valves. Other than this we are all looking healthy and are just hopping for some good news on Monday. 🤞🏻

201 views • 2 upvotes • 8 comments

COMMENT (8)

Ho

Posted at
We had monitoring all pregnancy. It is scary with so many unknowns. I was hospitalized at 26 weeks for increased monitoring and steroids but then released. Then with sudden changes I was admitted at 31wks and my boys were diagnosed with late onset TTTS and delivered via csection at 31+4. After 7&9weeks in the NICU they came home. My donor twin struggled more in NICU and is still smaller but at almost 9 months old they are both healthy and happy. Prayers for your family and hope that your babies grow and share well. Pic of my boys at Christmas showing off their sitting skills.

Al

Alyssa • Jan 9, 2020
They are super cute!! Glad to hear everything was okay and worked out for you.

Ka

Posted at
I was wondering how you guys were doing! Did you see Dr. Lim? He did my surgery and I still so impressed by him! I hope things look good for you guys at your next appt! I know it is incredibly overwhelming! I will keep you all in my prayers!

Al

Alyssa • Jan 9, 2020
I don’t remember who we saw. We saw a bunch of different doctors on Monday and there’s was an overwhelming amount of information given to us that the doctors name was the last thing I listened for. But we too hope that that is well next Monday.

Em

Posted at
Praying for y’all!!!

As

Posted at
Praying for you guys! It will all work out. Sounds like you’re getting really good care. How many weeks are you?

As

As • Jan 9, 2020
I know it’s stressful but sending you all the love and best wishes

Al

Alyssa • Jan 8, 2020
19w and 3d. When we go back I will be 20w and 1d