Background information: about 3 weeks ago my boyfriend and I went to Cincinnati Children’s for possible TTTS with our boys. They weren’t showing definite signs of it yet but there were markers for it. They had us go back a week later for a follow up and everything looked the same if not slightly better with the fluid going up on the ‘donor’ baby. They wanted us back 2 weeks later. (Yesterday)

Now: So yesterday we were at the hospital for a fetal MRI, ultrasound and echo. During the MRI, the doctor saw what looked like hydrops. So they rushed us to our ultrasound. Once done with that no one told us what was going on and took us upstairs to be registered for immediate surgery. Still without any information I did what anyone would do and refuse to sign consent papers until I spoke to the doctor about what was going on. 2 hours later the doctor came and spoke to us and informed us of the MRI results and that they may need to surgery but don’t want to do it just yet as it can be dangerous to both boys if it isn’t what is going to fix the hydrops. So we were then another 2 hours later taken for the echo. After echo we waited another 2 hours to talk to the doctor about everything that happened that day.

The echo showed that there was fluid in baby b and he does have hydrops but it’s not making his heart work any harder than it has been for the past month. But they want us to come back on Thursday, 1/30, for another ultrasound to see if there was any fluid build up and to figure out what is causing the hydrops.

With all of this being said; has anyone else been in this position? How did you cope with the possibility of losing one or both of your babies? Anything will help just can’t shake the feeling that something is more wrong than when we went. He moves all the time and doesn’t seem like he’s as sick as he is.