Beckwith-Wiedemann Syndrome

Rebecca

So today I found out my beautiful 7 week old baby has a genetic disorder called Beckwith-Wiedemann Syndrome. As I expected this to be true hearing it from the doctors really makes me so sad for my baby πŸ˜” the next few years will be difficult for him as we will have to closely monitor him but I know he is strong and will do amazing πŸ’™πŸ’™