Unfortunately I don’t have much to update as of right now.. they started her on a new seizure med but it doesn’t seem to be making any improvements, they did a ct scan, we’ll hopefully do the mri today the machine was broken yesterday. Just kind of a waiting game. We are looking into getting her a helmet as she falls with these seizures and hits her head. So if anyone has suggestions on one that’d be appreciated.

She is my little warrior. She has mostly been sleeping the past 24 hours which breaks my heart, but the second she wakes up we start having multiple seizures.. We miss home and brother and dad.😭😭