CSF Fluid Leak in 4mo?

Dora • Mama to Sofie 👶🏻 💜 7/24/2020 💜

Hi! My daughter is 20 weeks (15 weeks adjusted). We went in for her well check today and they found a slightly bulging soft spot on the top of her head. We’re being referred to get an ultrasound in a couple of days to check for a CSF leak. Following that, if it’s confirmed, we see a neurologist to see if they think it will heal on its own or need intervention like a shunt or surgery.

Does anyone have experience with this? I’m a nervous wreck. I had a CSF leak of my own from epidural but that’s so different from a little baby. 😓 Pic just because my heart is breaking.